Annabelle Cumyn

Annabelle Cumyn - GRIIS - Groupe de recherche interdisciplinaire en informatique de la santé

Professor in specialized medicine at the Faculté de médecine et des sciences de la santé of Université de Sherbrooke

President of the Research Ethics Board of CIUSSS de l’Estrie — CHUS

An internist, Dr. Annabelle Cumyn holds a specialization in obstetrical medicine and a master’s degree in health pedagogy. She helped found the Study Group in Obstetrical Medicine of Quebec (GÉMOQ), of which she was webmaster and vice-president until 2018. She co-leads the Canadian Consensus for a Curriculum in Obstetric Medicine (CanCOM) research group. Life brought her to research ethics, as ex-president and as current president of the research ethics committees of the CHUS and the CIUSSS de l’Estrie—CHUS, respectively.

Since 2018, Annabelle Cumyn has served as a member of the Interagency Advisory Panel on Research Ethics of Canada’s three federal research agencies (SSHRC, CIHR, NSERC). She participated in the Fonds de recherche du Québec working group on issues related to research ethics and research in artificial intelligence.

Since 2017, she has worked with Adrien Barton and Jean-François Ethier in the CLARET project. She explores ways in which citizens could give their consent to the use of their health data for research in Canada.

Education

MHPE, University of Illinois at Chicago, master’s in health education

M.D.,C.M. (Doctor of Medicine and Master of Surgery), McGill University

B.Sc., McGill University, biology

Awards

Dean’s honour roll, Faculty of Medicine and Health Sciences, Université de Sherbrooke, 2018

Dick Lee Research Award, North American Society of Obstetric Medicine (NASOM), 2013

Wendell and Margaret Laidley Fellowship, Foundation of the McGill University Health Centre, 2002

Jonathan Campbell Meakins and Meakins Family Memorial Fellowship, McGill Medical Education Centre, 2000

Publications

Cumyn A, Ménard J-F, Barton A, Dault R, Lévesque F, Ethier J-F (2023) Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. J Med Internet Res 25:e45002. https://doi.org/10.2196/45002 Cite
Cumyn A, Dault R, Barton A, Cloutier A-M, Ethier J-F (2021) Citizens, Research Ethics Committee Members and Researchers’ Attitude Toward Information and Consent for the Secondary Use of Health Data: Implications for Research Within Learning Health Systems. J Empir Res Hum Res Ethics 16:165–178. https://doi.org/10.1177/1556264621992214 Cite Download
Cumyn A, Barton A, Dault R, Safa N, Cloutier A-M, Ethier J-F (2021) Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public's perspective. BMC Med Ethics 22:81. Cite Download
Barton A, Cumyn A, Dault R, Ethier J-F (2021) Gift, Reciprocity and Learning Health Systems. Am J Bioeth 21:91–93. Cite
Cumyn A, Barton A, Dault R, Cloutier A-M, Jalbert R, Ethier J-F (2020) Informed consent within a learning health system: A scoping review. Learn Health Syst 4:e10206. Cite Download
Durivage A, Le Templier G, Cumyn A, Sauvé N (2019) Pregnancy in a woman with latent myeloproliferative neoplasm induced chronic portal vein thrombosis, portal cavernoma, and gastric varices. Case Rep Obstet Gynecol 2019. https://doi.org/10.1155/2019/5702983 Cite Download
Cumyn A, Card SE, Gibson P (2019) Mapping of essential content of an obstetric medicine curriculum from the perspective of two groups. Canadian Journal of General Internal Medicine 14:13–20 Cite Download
Belzile M, Pouliot A, Cumyn A, Cote AM (2018) Renal physiology and fluid and electrolyte disorders in pregnancy. Best Pract Res Clin Obstet Gynaecol. https://doi.org/10.1016/j.bpobgyn.2018.11.008 Cite
Cumyn A, Ouellet K, Côté A-M, Francoeur C, St-Onge C (2018) Role of researchers in the ethical conduct of research: A discourse analysis from different stakeholder perspectives. Ethics & Behavior 0:1–16. Cite
Cumyn A, Sauve N, Rey E (2017) Atrial fibrillation with a structurally normal heart in pregnancy: An international survey on current practice. Obstet Med 10:74–78. https://doi.org/10.1177/1753495X16685684 Cite
Sauvé N, Rey É, Cumyn A (2017) Atrial fibrillation in a structurally normal heart during pregnancy: A review of cases from a registry and from the literature. J Obstet Gynaecol Can 39:18–24. https://doi.org/10.1016/j.jogc.2016.09.076 Cite
Barton A, Cumyn A, Jalbert R, Dault R, Ethier J-F (2017) Consent to secondary use of clinical data for research purposes in a LHS: a scoping review. Palmer Common, État-Unis Cite
Cumyn A, Ethier J-F (2021) Quels méthodes et outils pour favoriser l’acceptabilité sociale ? Cite
Cumyn A, Wilhelmy C (2021) Accès aux données  : des pistes de solutions de citoyens et chercheurs Cite
Cumyn A, Barton A, Ethier J-F (2021) Projet CLARET  : Données de santé et méta-consentement Cite
Cumyn A (2021) Projet CLARET : Données de santé et méta-consentement Cite
Cumyn A, Ethier J-F (2021) Projet CLARET : Données de santé et méta-consentement Cite
Cumyn A, Ethier J-F (2021) Projet CLARET : Données de santé et méta-consentement Cite
Cumyn A, Ethier J-F (2021) Les systèmes de santé apprenants et PARS3: mettre le patient au cœur de sa santé Cite
Beaudoin A-A, Dault R, Barton A, Cumyn A, Cloutier A-M, Ethier J-F (2018) Initiative CLARET: consentement pour l’utilisation secondaire des données médicales en recherche Cite
Dault R, Barton A, Cumyn A, Cloutier A-M, Ethier J-F (2018) Caractériser le processus de consentement à la recherche dans un système de santé apprenant Cite Download
Dault R, Barton A, Cumyn A, Cloutier A-M, Ethier J-F (2018) Caractériser le processus de consentement à la recherche dans un système de santé apprenant Cite Download

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