CLARET Team
Researchers
Jean-François Ethier
Full Professor of medicine at Université de Sherbrooke
Research Chair in Health Informatics, Université de Sherbrooke
Licensed physician at the CHUS
Annabelle Cumyn
Professor in specialized medicine at the Faculté de médecine et des sciences de la santé of Université de Sherbrooke
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Jean-Frédéric Ménard
Assistant professor in law at Université de Sherbrooke
View profileCo-investigator
Adrien Barton
CNRS research fellow at the Institut de recherche en informatique in Toulouse
Associate professor at the Department of Philosophy at Université de Sherbrooke
Research coordinator
Roxanne Dault
Research coordinator
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Émilie Bélanger
Master’s student in law under the direction of Prof. Jean-François Ethier, Prof. Jean‑Frédéric Ménard and Prof. Annabelle Cumyn
View profileCollaborators
Professor Daniel J. Caron
Daniel J. Caron is a professor at the École nationale d’administration publique, where he holds the Chaire de recherche en exploitation des ressources informationnelles. He is also an adjunct professor at Carleton University. We are working closely with Prof. Caron to ensure a link with our Phase 2 research on transparency and his project on citizen trust and digital identity – issues in which he specializes.
Patient Partners
Denis Boutin
Denis has been living with type 1 diabetes for 40 years. In 2015, he had his first contact with the world of health research, first as a participant in a diabetes research project, then as a member of the Comité stratégique patient partenaire du CRCHUS. Having retired a few years ago, Denis is particularly interested in and passionate about measures, ideas and projects leading to the participative and dynamic integration of patients in research. As a patient partner, he is involved in diabetes research projects, governance mandates and research work related to data access. Also interested in data access and transparency issues, he has been collaborating on the CLARET research program since 2021.
Organizations
Alphare
Alphare, a Quebec non-profit organization specializing in popular literacy, has been working with us since 2018. Thanks to the expertise of the Alphare team, we can be sure that the topics we cover in surveys or focus groups are well understood by the participants.
First Nations of Quebec and Labrador Health and Social Services Commission
Thanks to the expertise of our partners at the First Nations of Quebec and Labrador Health and Social Services Commission (FNQLHSSC), we are deepening our reflections so that our recommendations support the wishes of the First Nations of Quebec and Labrador regarding their principles on data governance.
Expert Committees
Expert Committee Members – Phase 1
- Mike Benigeri, professor, Département de médecine sociale et préventive, Université de Montréal;
- Jean-Christophe Bélisle-Pipon, postdoctoral researcher;
- Marie Hirtle, chair of Research Ethics Board, McGill University Health Centre (MUHC);
- Sébastien Gambs, professor, Département d’informatique, Université du Québec à Montréal (UQÀM);
- Michel Bergeron, consultant in ethics, research and scientific integrity and member of the Commission de l’éthique en sciences et en technologie du Québec (CEST);
- Ana Marin, associate professor at the Université de Sherbrooke and clinical and organizational ethics advisor, CISSS de Chaudière‑Appalaches;
- Marie-Josée Bernardi, chair of Research Ethics Board, CISSS des Laurentides;
- Louis-Denis Pelletier, patient research partner, Université de Sherbrooke;
- Christian Chabot, patient research partner, Université de Sherbrooke.
Expert Committee Members – Phase 2
- Mike Benigeri, director, Bureau des données clinico-administratives at Institut national d’excellence en santé et en services sociaux;
- Marie Hirtle, assistant director at the Department of Quality, Evaluation, Performance and Ethics at the MUHC and MUHC Research Institute, director of the MUHC Centre for Applied Ethics, chair of MUHC Research Ethics Board;
- Sébastien Gambs, professor, Département d’informatique, Université du Québec à Montréal (UQÀM);
- Ana Marin, clinical and organizational ethics advisor at CISSS de Chaudière-Appalaches, member of the Comité d’éthique de la recherche au CIUSSS de la Capitale-Nationale and CHU de Québec-Université Laval;
- Marie-Josée Bernardi, director of the CHUM research ethics board, research ethics board chair and of the CISSS des Laurentides;
- Aude Motulsky, assistant professor, Département de gestion, d’évaluation et de politique de santé of the École de santé publique at the Université de Montréal, researcher at the CHUM Research Centre, member of the Centre de recherche en droit public, Université de Montréal;
- Nancy Gros-Louis McHugh, research manager and team leader at the CSSSPNQL;
- Emilie Grantham, scientific coordinator at the CSSSPNQL;
- Denis Boutin, patient partner, Université de Sherbrooke.
Financial Partners
