GRIIS

Phase 1

Phase 1 – Exploration of Approaches to Support Transparency and Autonomy

The research carried out during this phase revealed that the meta consent model (Ploug & Holm, 2016) is the most effective method for promoting the autonomy of Quebec citizens. It enables them to be informed and have a say in the use of their health data in research, while being compatible with learning health systems.

A meta consent model allows individuals to choose, via a web portal (or any other technological infrastructure), how and how often they will be informed of access to and use of their health data, of ongoing research activities, and of the results of research projects. Thanks to this model, individuals can personalize their consent according to the characteristics of research projects. In short, this is the consent model that puts the individual at the heart of decisions-making regarding the use of their health data.

Meta Consent in Comic Strip

This comic strip was presented at the Journée annuelle du Réseau-1 Québec, and explains the meta consent model’s principles.

Video Clips

These clips were produced within our research works and explain the importance of health data for research and the meta consent model.

Context

Current consent models for the use of health data stored in public network institutions in research are not adapted to learning health systems. Individual consent, which is granted by an individual for a specific research project, hinders the deployment of research projects requiring large samples of data and cannot operate on a large scale. As for the delegation of consent to a third party, for which no information process is provided, this does not promote neither transparency nor the autonomy of citizens about the use of their health data in research.

Because autonomy is key to Quebeckers’ acceptability regarding the use of their health data in research and since consent supports autonomy, an innovative consent model must allow to obtain, forward, and manage citizens’ consent for learning health systems to access and use their health data in research.

Objectives

For this first phase of the research program, the following objectives have been defined:

OBJECTIVE 1

Identify and analyze the proposed information and consent methods for access to health data and its use in research in the context of learning health systems.

OBJECTIVE 2

Understand the level of acceptability and understanding of citizens toward the consent model deemed to be the most appropriate in the context as described above.

OBJECTIVE 3

Make recommendations promoting autonomy and transparency to guide the decision-makers responsible for developing the current ethical and legal frameworks in Quebec governing access to health data and its use in research.

Methodology


Through a scoping review, identify the consent models that promote citizen autonomy and that have been proposed for participation in research activities in a learning health system.

Analyze which approaches, depending on the context in which they are used, are considered the most feasible and acceptable from an ethical, legal, and social point of view.


Meta consent having been identified as the most autonomy-friendly consent method, the CLARET team carried out a sequential mixed methods study consisting of a survey and a series of focus groups with Quebec residents, including people with a low level of education. The purpose of these consultations was to sound out the opinions of citizens on the following subjects :

  • current information methods and consent models;
  • understanding and acceptability of meta consent, an innovative consent model in Quebec;
  • conditions, obstacles, and possible solutions for implementing the meta consent model in Quebec.

This last objective consisted of consulting people with expertise in various fields (ethics, legal, data security, informatics, and research) and people with whom we have developed a patient partnership to draw up a series of recommendations. These recommendations, based on the results of the literature review and the major findings of the mixed study, were presented directly by some CLARET team members who took part in the working group drafting the Act respecting health and social services information, which was adopted in April 2023.

Conclusions

A Quebec citizen survey shows that :

Informed and consented use of health data in research

90.4%

of respondents support the use of their health data (including certain personal information) in research if they are informed about it and consent is requested..

Acceptability of the use in research of health data that includes certain personal information

81.2%

of respondents disagree with the use of their data in research if they are not informed about it and no consent is requested.

64.6%

of respondents disagree with the use of their data in research if they are informed about it but no consent is requested..

Transparency and autonomy in the use of health data in research

79.9%

of respondents support the use of a web-based platform to receive information about the use of their data and to express their consent on this matter.

Source : Citizens, Research Ethics Committee Members and Researchers’ Attitude Toward Information and Consent for the Secondary Use of Health Data: Implications for Research Within Learning Health Systems (2021)

Focus groups conducted with citizens across Quebec in 2019 have led us to conclude that :

Source: Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public’s perspective (2021)

Scientific Benefits

Scientific Publications

2298129 CLARET_ARTICLE_PHASE1 1 https://www.zotero.org/styles/springer-basic-author-date-no-et-al 50 date desc 1 1 title 1704 https://griis.ca/wp-content/plugins/zotpress/
%7B%22status%22%3A%22success%22%2C%22updateneeded%22%3Afalse%2C%22instance%22%3Afalse%2C%22meta%22%3A%7B%22request_last%22%3A0%2C%22request_next%22%3A0%2C%22used_cache%22%3Atrue%7D%2C%22data%22%3A%5B%7B%22key%22%3A%22J5E8HBS3%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222021-07%22%2C%22numChildren%22%3A3%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Dault%20R%2C%20Barton%20A%2C%20Cloutier%20A-M%2C%20Ethier%20J-F%20%282021%29%20%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttp%3A%5C%2F%5C%2Fdx.doi.org%5C%2F10.1177%5C%2F1556264621992214%26%23039%3B%26gt%3BCitizens%2C%20Research%20Ethics%20Committee%20Members%20and%20Researchers%26%23039%3B%20Attitude%20Toward%20Information%20and%20Consent%20for%20the%20Secondary%20Use%20of%20Health%20Data%3A%20Implications%20for%20Research%20Within%20Learning%20Health%20Systems%26lt%3B%5C%2Fa%26gt%3B.%20J%20Empir%20Res%20Hum%20Res%20Ethics%2016%3A165%5Cu2013178.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F1556264621992214%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DJ5E8HBS3%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%20%26lt%3Ba%20title%3D%26%23039%3BDownload%26%23039%3B%20class%3D%26%23039%3Bzp-DownloadURL%20zp-getDownloadURL%26%23039%3B%20data-zp-dl%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bdlkey%3DB675ZJYB%26amp%3Bcontent_type%3Dapplication%5C%2Fpdf%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BDownload%26lt%3B%5C%2Fa%26gt%3B%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Citizens%2C%20Research%20Ethics%20Committee%20Members%20and%20Researchers%27%20Attitude%20Toward%20Information%20and%20Consent%20for%20the%20Secondary%20Use%20of%20Health%20Data%3A%20Implications%20for%20Research%20Within%20Learning%20Health%20Systems%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Anne-Marie%22%2C%22lastName%22%3A%22Cloutier%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22A%20survey%20was%20conducted%20to%20assess%20citizens%2C%20research%20ethics%20committee%20members%2C%20and%20researchers%26%23039%3B%20attitude%20toward%20information%20and%20consent%20for%20the%20secondary%20use%20of%20health%20data%20for%20research%20within%20learning%20health%20systems%20%28LHSs%29.%20Results%20show%20that%20the%20reuse%20of%20health%20data%20for%20research%20to%20advance%20knowledge%20and%20improve%20care%20is%20valued%20by%20all%20parties%3B%20consent%20regarding%20health%20data%20reuse%20for%20research%20has%20fundamental%20importance%20particularly%20to%20citizens%3B%20and%20all%20respondents%20deemed%20important%20the%20existence%20of%20a%20secure%20website%20to%20support%20the%20information%20and%20consent%20processes.%20This%20survey%20was%20part%20of%20a%20larger%20project%20that%20aims%20at%20exploring%20public%20perspectives%20on%20alternate%20approaches%20to%20the%20current%20consent%20models%20for%20health%20data%20reuse%20to%20take%20into%20consideration%20the%20unique%20features%20of%20LHSs.%20The%20revised%20model%20will%20need%20to%20ensure%20that%20citizens%20are%20given%20the%20opportunity%20to%20be%20better%20informed%20about%20upcoming%20research%20and%20have%20their%20say%2C%20when%20possible%2C%20in%20the%20use%20of%20their%20data.%22%2C%22date%22%3A%222021-07%22%2C%22language%22%3A%22eng%22%2C%22DOI%22%3A%2210.1177%5C%2F1556264621992214%22%2C%22ISSN%22%3A%221556-2654%22%2C%22url%22%3A%22http%3A%5C%2F%5C%2Fdx.doi.org%5C%2F10.1177%5C%2F1556264621992214%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A12%3A15Z%22%7D%7D%2C%7B%22key%22%3A%22L9BN2I6M%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222021-06-29%22%2C%22numChildren%22%3A3%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Dault%20R%2C%20Safa%20N%2C%20Cloutier%20A-M%2C%20Ethier%20J-F%20%282021%29%20%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12910-021-00647-x%26%23039%3B%26gt%3BMeta-consent%20for%20the%20secondary%20use%20of%20health%20data%20within%20a%20learning%20health%20system%3A%20a%20qualitative%20study%20of%20the%20public%26%23039%3Bs%20perspective%26lt%3B%5C%2Fa%26gt%3B.%20BMC%20Med%20Ethics%2022%3A81.%20%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DL9BN2I6M%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%20%26lt%3Ba%20title%3D%26%23039%3BDownload%26%23039%3B%20class%3D%26%23039%3Bzp-DownloadURL%20zp-getDownloadURL%26%23039%3B%20data-zp-dl%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bdlkey%3DRKSE23KZ%26amp%3Bcontent_type%3Dapplication%5C%2Fpdf%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BDownload%26lt%3B%5C%2Fa%26gt%3B%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Meta-consent%20for%20the%20secondary%20use%20of%20health%20data%20within%20a%20learning%20health%20system%3A%20a%20qualitative%20study%20of%20the%20public%27s%20perspective%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nissrine%22%2C%22lastName%22%3A%22Safa%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Anne-Marie%22%2C%22lastName%22%3A%22Cloutier%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20The%20advent%20of%20learning%20healthcare%20systems%20%28LHSs%29%20raises%20an%20important%20implementation%20challenge%20concerning%20how%20to%20request%20and%20manage%20consent%20to%20support%20secondary%20use%20of%20data%20in%20learning%20cycles%2C%20particularly%20research%20activities.%20Current%20consent%20models%20in%20Quebec%20were%20not%20established%20with%20the%20context%20of%20LHSs%20in%20mind%20and%20do%20not%20support%20the%20agility%20and%20transparency%20required%20to%20obtain%20consent%20from%20all%20involved%2C%20especially%20the%20citizens.%20Therefore%2C%20a%20new%20approach%20to%20consent%20is%20needed.%20Previous%20work%20identified%20the%20meta-consent%20model%20as%20a%20promising%20alternative%20to%20fulfill%20the%20requirements%20of%20LHSs%2C%20particularly%20large-scale%20deployments.%20We%20elicited%20the%20public%26%23039%3Bs%20attitude%20toward%20the%20meta-consent%20model%20to%20evaluate%20if%20the%20model%20could%20be%20understood%20by%20the%20citizens%20and%20would%20be%20deemed%20acceptable%20to%20prepare%20for%20its%20possible%20implementation%20in%20Quebec.%5CnMETHODS%3A%20Eight%20focus%20groups%2C%20with%20a%20total%20of%2063%20members%20of%20the%20general%20public%20from%20various%20backgrounds%20were%20conducted%20in%20Quebec%2C%20Canada%2C%20in%202019.%20Explicit%20attention%20was%20given%20to%20literacy%20levels%2C%20language%20spoken%20at%20home%20and%20rural%20vs%20urban%20settings.%20We%20assessed%20attitudes%2C%20concerns%20and%20facilitators%20regarding%20key%20components%20of%20the%20meta-consent%20model%3A%20predefined%20categories%20to%20personalized%20consent%20requests%2C%20a%20dynamic%20web-based%20infrastructure%20to%20record%20meta-consent%2C%20and%20default%20settings.%20To%20analyse%20the%20discussions%2C%20a%20thematic%20content%20analysis%20was%20performed%20using%20a%20qualitative%20software.%5CnRESULTS%3A%20Our%20findings%20showed%20that%20participants%20were%20supportive%20of%20this%20new%20approach%20of%20consent%20as%20it%20promotes%20transparency%20and%20offers%20autonomy%20for%20the%20management%20of%20their%20health%20data.%20Key%20facilitators%20were%20identified%20to%20be%20considered%20in%20the%20implementation%20of%20a%20meta-consent%20model%20in%20the%20Quebec%20LHSs%3A%20information%20and%20transparency%2C%20awareness%20campaigns%2C%20development%20of%20educational%20tools%2C%20collaboration%20of%20front-line%20healthcare%20professionals%2C%20default%20settings%20deemed%20acceptable%20by%20the%20society%20as%20well%20as%20close%20partnerships%20with%20recognized%20and%20trusted%20institutions.%5CnCONCLUSIONS%3A%20This%20qualitative%20study%20reveals%20the%20openness%20of%20a%20sample%20of%20the%20Quebec%20population%20regarding%20the%20meta-consent%20model%20for%20secondary%20use%20of%20health%20data%20for%20research.%20This%20first%20exploratory%20study%20conducted%20with%20the%20public%20is%20an%20important%20step%20in%20guiding%20decision-makers%20in%20the%20next%20phases%20of%20implementing%20the%20various%20strategies%20to%20support%20access%20and%20use%20of%20health%20data%20in%20Quebec.%22%2C%22date%22%3A%222021-06-29%22%2C%22language%22%3A%22eng%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12910-021-00647-x%22%2C%22ISSN%22%3A%221472-6939%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12910-021-00647-x%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A12%3A42Z%22%7D%7D%2C%7B%22key%22%3A%22FU4Z744F%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Barton%20et%20al.%22%2C%22parsedDate%22%3A%222021-04%22%2C%22numChildren%22%3A2%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BBarton%20A%2C%20Cumyn%20A%2C%20Dault%20R%2C%20Ethier%20J-F%20%282021%29%20%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1080%5C%2F15265161.2021.1891341%26%23039%3B%26gt%3BGift%2C%20Reciprocity%20and%20Learning%20Health%20Systems%26lt%3B%5C%2Fa%26gt%3B.%20Am%20J%20Bioeth%2021%3A91%5Cu201393.%20%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DFU4Z744F%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Gift%2C%20Reciprocity%20and%20Learning%20Health%20Systems%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222021-04%22%2C%22language%22%3A%22eng%22%2C%22DOI%22%3A%2210.1080%5C%2F15265161.2021.1891341%22%2C%22ISSN%22%3A%221536-0075%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1080%5C%2F15265161.2021.1891341%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A12%3A59Z%22%7D%7D%2C%7B%22key%22%3A%224G3CV6GF%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222019-12-04%22%2C%22numChildren%22%3A3%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Dault%20R%2C%20Cloutier%20A-M%2C%20Jalbert%20R%2C%20Ethier%20J-F%20%282019%29%20%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1002%5C%2Flrh2.10206%26%23039%3B%26gt%3BInformed%20consent%20within%20a%20learning%20health%20system%3A%20A%20scoping%20review%26lt%3B%5C%2Fa%26gt%3B.%20Learn%20Health%20Syst%204%3Ae10206.%20%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D4G3CV6GF%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%20%26lt%3Ba%20title%3D%26%23039%3BDownload%26%23039%3B%20class%3D%26%23039%3Bzp-DownloadURL%20zp-getDownloadURL%26%23039%3B%20data-zp-dl%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bdlkey%3D5QA7LTBI%26amp%3Bcontent_type%3Dapplication%5C%2Fpdf%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BDownload%26lt%3B%5C%2Fa%26gt%3B%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Informed%20consent%20within%20a%20learning%20health%20system%3A%20A%20scoping%20review%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Anne-Marie%22%2C%22lastName%22%3A%22Cloutier%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Rosalie%22%2C%22lastName%22%3A%22Jalbert%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22Introduction%3A%20A%20major%20consideration%20for%20the%20implementation%20of%20a%20learning%20health%20system%20%28LHS%29%20is%20consent%20from%20participants%20to%20the%20use%20of%20their%20data%20for%20research%20purposes.%20The%20main%20objective%20of%20this%20paper%20was%20to%20identify%20in%20the%20literature%20which%20types%20of%20consent%20have%20been%20proposed%20for%20participation%20in%20research%20observational%20activities%20in%20a%20LHS.%20We%20were%20particularly%20interested%20in%20understanding%20which%20approaches%20were%20seen%20as%20most%20feasible%20and%20acceptable%20and%20in%20which%20context%2C%20in%20order%20to%20inform%20the%20development%20of%20a%20Quebec-based%20LHS.%5CnMETHODS%3A%20Using%20a%20scoping%20review%20methodology%2C%20we%20searched%20scientific%20and%20legal%20databases%20as%20well%20as%20the%20gray%20literature%20using%20specific%20terms.%20Full-text%20articles%20were%20reviewed%20independently%20by%20two%20authors%20on%20the%20basis%20of%20the%20following%20concepts%3A%20%28a%29%20LHS%20and%20%28b%29%20approach%20to%20consent.%20The%20selected%20papers%20were%20imported%20in%20NVivo%20software%20for%20analysis%20in%20the%20light%20of%20a%20conceptual%20framework%20that%20distinguishes%20various%2C%20largely%20independent%20dimensions%20of%20consent.%5CnRESULTS%3A%20A%20total%20of%2093%20publications%20were%20analysed%20for%20this%20review.%20Several%20studies%20reach%20opposing%20conclusions%20concerning%20the%20best%20approach%20to%20consent%20within%20a%20LHS.%20However%2C%20in%20the%20light%20of%20the%20conceptual%20framework%20we%20developed%2C%20we%20found%20that%20many%20of%20these%20results%20are%20distorted%20by%20the%20conflation%20between%20various%20characteristics%20of%20consent.%20Thus%2C%20when%20these%20characteristics%20are%20distinguished%2C%20the%20results%20mainly%20suggest%20the%20prime%20importance%20of%20the%20communication%20process%2C%20by%20contrast%20to%20the%20scope%20of%20consent%20or%20the%20kind%20of%20action%20required%20by%20participants%20%28opt-in%5C%2Fopt-out%29.%20We%20identified%20two%20models%20of%20consent%20that%20were%20especially%20relevant%20for%20our%20purpose%3A%20metaconsent%20and%20dynamic%20consent.%5CnCONCLUSIONS%3A%20Our%20review%20shows%20the%20importance%20of%20distinguishing%20carefully%20the%20various%20features%20of%20the%20consent%20process.%20It%20also%20suggests%20that%20the%20metaconsent%20model%20is%20a%20valuable%20model%20within%20a%20LHS%2C%20as%20it%20addresses%20many%20of%20the%20issues%20raised%20with%20regards%20to%20feasibility%20and%20acceptability.%20We%20propose%20to%20complement%20this%20model%20by%20adding%20the%20modalities%20of%20the%20information%20process%20to%20the%20dimensions%20relevant%20in%20the%20metaconsent%20process.%22%2C%22date%22%3A%222019-12-04%22%2C%22language%22%3A%22eng%22%2C%22DOI%22%3A%2210.1002%5C%2Flrh2.10206%22%2C%22ISSN%22%3A%222379-6146%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1002%5C%2Flrh2.10206%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A11%3A46Z%22%7D%7D%5D%7D
Cumyn A, Dault R, Barton A, Cloutier A-M, Ethier J-F (2021) Citizens, Research Ethics Committee Members and Researchers' Attitude Toward Information and Consent for the Secondary Use of Health Data: Implications for Research Within Learning Health Systems. J Empir Res Hum Res Ethics 16:165–178. https://doi.org/10.1177/1556264621992214 Cite Download
Cumyn A, Barton A, Dault R, Safa N, Cloutier A-M, Ethier J-F (2021) Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public's perspective. BMC Med Ethics 22:81. Cite Download
Barton A, Cumyn A, Dault R, Ethier J-F (2021) Gift, Reciprocity and Learning Health Systems. Am J Bioeth 21:91–93. Cite
Cumyn A, Barton A, Dault R, Cloutier A-M, Jalbert R, Ethier J-F (2019) Informed consent within a learning health system: A scoping review. Learn Health Syst 4:e10206. Cite Download

Conferences and Presentations

2298129 CLARET_PRESENTATION_PHASE1 1 https://www.zotero.org/styles/springer-basic-author-date-no-et-al 50 date desc 1 1 title 1704 https://griis.ca/wp-content/plugins/zotpress/
%7B%22status%22%3A%22success%22%2C%22updateneeded%22%3Afalse%2C%22instance%22%3Afalse%2C%22meta%22%3A%7B%22request_last%22%3A0%2C%22request_next%22%3A0%2C%22used_cache%22%3Atrue%7D%2C%22data%22%3A%5B%7B%22key%22%3A%22AXYLUE3T%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20and%20Ethier%22%2C%22parsedDate%22%3A%222021-11-30%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Ethier%20J-F%20%282021%29%20Acceptabilit%26%23xE9%3B%20sociale%20-%20conditions%20et%20solutions%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DAXYLUE3T%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Acceptabilit%5Cu00e9%20sociale%20-%20conditions%20et%20solutions%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222021-11-30%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-24T18%3A58%3A32Z%22%7D%7D%2C%7B%22key%22%3A%222V9HMPI9%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20and%20Wilhelmy%22%2C%22parsedDate%22%3A%222021-10-28%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Wilhelmy%20C%20%282021%29%20Acc%26%23xE8%3Bs%20aux%20donn%26%23xE9%3Bes%26%23x202F%3B%3A%20des%20pistes%20de%20solutions%20de%20citoyens%20et%20chercheurs%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D2V9HMPI9%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Acc%5Cu00e8s%20aux%20donn%5Cu00e9es%20%3A%20des%20pistes%20de%20solutions%20de%20citoyens%20et%20chercheurs%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Catherine%22%2C%22lastName%22%3A%22Wilhelmy%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222021-10-28%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A23%3A19Z%22%7D%7D%2C%7B%22key%22%3A%22FLCKHF7G%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%22%2C%22parsedDate%22%3A%222021-10-26%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%20%282021%29%20%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fivado.ca%5C%2Fevenements%5C%2Fjournees-quebecoises-de-valorisation-des-donnees%5C%2F%26%23039%3B%26gt%3BInt%5Cu00e9gration%20recherche%20et%20soins%20%3A%20m%5Cu00e9ta-consentement%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DFLCKHF7G%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Int%5Cu00e9gration%20recherche%20et%20soins%20%3A%20m%5Cu00e9ta-consentement%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%2226%20octobre%202021%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fivado.ca%5C%2Fevenements%5C%2Fjournees-quebecoises-de-valorisation-des-donnees%5C%2F%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A24%3A02Z%22%7D%7D%2C%7B%22key%22%3A%2293KAG5IB%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222021-07-27%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Ethier%20J-F%20%282021%29%20Projet%20CLARET%26%23x202F%3B%3A%20Donn%26%23xE9%3Bes%20de%20sant%26%23xE9%3B%20et%20m%26%23xE9%3Bta-consentement%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D93KAG5IB%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Projet%20CLARET%20%3A%20Donn%5Cu00e9es%20de%20sant%5Cu00e9%20et%20m%5Cu00e9ta-consentement%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222021-07-27%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-25T17%3A59%3A54Z%22%7D%7D%2C%7B%22key%22%3A%22KD5KVK35%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222021-07-05%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Ethier%20J-F%20%282021%29%20Projet%20CLARET%26%23x202F%3B%3A%20Donn%26%23xE9%3Bes%20de%20sant%26%23xE9%3B%20et%20m%26%23xE9%3Bta-consentement%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DKD5KVK35%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Projet%20CLARET%20%3A%20Donn%5Cu00e9es%20de%20sant%5Cu00e9%20et%20m%5Cu00e9ta-consentement%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222021-07-05%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A22%3A51Z%22%7D%7D%2C%7B%22key%22%3A%22BYNRS3E9%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%22%2C%22parsedDate%22%3A%222021-05-17%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%20%282021%29%20Projet%20CLARET%26%23x202F%3B%3A%20Donn%26%23xE9%3Bes%20de%20sant%26%23xE9%3B%20et%20m%26%23xE9%3Bta-consentement%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DBYNRS3E9%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Projet%20CLARET%20%3A%20Donn%5Cu00e9es%20de%20sant%5Cu00e9%20et%20m%5Cu00e9ta-consentement%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222021-05-17%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A16%3A34Z%22%7D%7D%2C%7B%22key%22%3A%2255KG3TPS%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222021%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Ethier%20J-F%20%282021%29%20Projet%20CLARET%26%23xA0%3B%20%3A%20Donn%26%23xE9%3Bes%20de%20sant%26%23xE9%3B%20et%20m%26%23xE9%3Bta-consentement%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D55KG3TPS%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Projet%20CLARET%20%20%3A%20Donn%5Cu00e9es%20de%20sant%5Cu00e9%20et%20m%5Cu00e9ta-consentement%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%22mai%202021%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-24T18%3A49%3A32Z%22%7D%7D%2C%7B%22key%22%3A%22PZMD5TV5%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222021%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Ethier%20J-F%20%282021%29%20Projet%20CLARET%26%23x202F%3B%3A%20Donn%26%23xE9%3Bes%20de%20sant%26%23xE9%3B%20et%20m%26%23xE9%3Bta-consentement%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DPZMD5TV5%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Projet%20CLARET%20%3A%20Donn%5Cu00e9es%20de%20sant%5Cu00e9%20et%20m%5Cu00e9ta-consentement%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%22juin%202021%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-25T17%3A59%3A02Z%22%7D%7D%2C%7B%22key%22%3A%22ABKIV5ZU%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Dault%20and%20Cumyn%22%2C%22parsedDate%22%3A%222020-01-17%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BDault%20R%2C%20Cumyn%20A%20%282020%29%20%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.youtube.com%5C%2Fwatch%3Fv%3DiyL-VB9aCUE%26amp%3Bt%3D10s%26%23039%3B%26gt%3BPoint%20de%20vue%20des%20citoyens%20sur%20le%20consentement%20%5Cu00e0%20l%26%23039%3Butilisation%20des%20donn%5Cu00e9es%20de%20sant%5Cu00e9%20en%20recherche%20%5Cu2013%20Projet%20CLARET%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DABKIV5ZU%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Point%20de%20vue%20des%20citoyens%20sur%20le%20consentement%20%5Cu00e0%20l%27utilisation%20des%20donn%5Cu00e9es%20de%20sant%5Cu00e9%20en%20recherche%20%5Cu2013%20Projet%20CLARET%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222020-01-17%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.youtube.com%5C%2Fwatch%3Fv%3DiyL-VB9aCUE%26t%3D10s%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A14%3A01Z%22%7D%7D%2C%7B%22key%22%3A%22UIXAUX9X%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222019-10%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Ethier%20J-F%20%282019%29%20Le%20point%20de%20vue%20des%20citoyens%20quant%20%26%23xE0%3B%20l%26%23x2019%3Butilisation%20des%20donn%26%23xE9%3Bes%20de%20sant%26%23xE9%3B%20pour%20la%20recherche%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DUIXAUX9X%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Le%20point%20de%20vue%20des%20citoyens%20quant%20%5Cu00e0%20l%27utilisation%20des%20donn%5Cu00e9es%20de%20sant%5Cu00e9%20pour%20la%20recherche%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%22octobre%202019%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-24T18%3A49%3A18Z%22%7D%7D%2C%7B%22key%22%3A%229U3JH23R%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Cumyn%20et%20al.%22%2C%22parsedDate%22%3A%222019-04-24%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BCumyn%20A%2C%20Barton%20A%2C%20Ethier%20J-F%20%282019%29%20Le%20consentement%20%26%23xE0%3B%20l%26%23x2019%3Butilisation%20des%20donn%26%23xE9%3Bes%20de%20sant%26%23xE9%3B%20pour%20la%20recherche%26%23x202F%3B%3A%20CLARET%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D9U3JH23R%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Le%20consentement%20%5Cu00e0%20l%27utilisation%20des%20donn%5Cu00e9es%20de%20sant%5Cu00e9%20pour%20la%20recherche%20%3A%20CLARET%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222019-04-24%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-24T18%3A58%3A02Z%22%7D%7D%5D%7D
Cumyn A, Ethier J-F (2021) Acceptabilité sociale - conditions et solutions Cite
Cumyn A, Wilhelmy C (2021) Accès aux données : des pistes de solutions de citoyens et chercheurs Cite
Cumyn A (2021) Intégration recherche et soins : méta-consentement Cite
Cumyn A, Barton A, Ethier J-F (2021) Projet CLARET : Données de santé et méta-consentement Cite
Cumyn A, Barton A, Ethier J-F (2021) Projet CLARET : Données de santé et méta-consentement Cite
Cumyn A (2021) Projet CLARET : Données de santé et méta-consentement Cite
Cumyn A, Barton A, Ethier J-F (2021) Projet CLARET  : Données de santé et méta-consentement Cite
Cumyn A, Barton A, Ethier J-F (2021) Projet CLARET : Données de santé et méta-consentement Cite
Dault R, Cumyn A (2020) Point de vue des citoyens sur le consentement à l'utilisation des données de santé en recherche – Projet CLARET Cite
Cumyn A, Barton A, Ethier J-F (2019) Le point de vue des citoyens quant à l’utilisation des données de santé pour la recherche Cite
Cumyn A, Barton A, Ethier J-F (2019) Le consentement à l’utilisation des données de santé pour la recherche : CLARET Cite

Poster Presentations

2298129 CLARET_AFFICHE_PHASE1 1 https://www.zotero.org/styles/springer-basic-author-date-no-et-al 50 date desc 1 1 title 1704 https://griis.ca/wp-content/plugins/zotpress/
%7B%22status%22%3A%22success%22%2C%22updateneeded%22%3Afalse%2C%22instance%22%3Afalse%2C%22meta%22%3A%7B%22request_last%22%3A0%2C%22request_next%22%3A0%2C%22used_cache%22%3Atrue%7D%2C%22data%22%3A%5B%7B%22key%22%3A%224JXB4LYM%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Barton%20et%20al.%22%2C%22parsedDate%22%3A%222019-06-14%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BBarton%20A%2C%20Cumyn%20A%2C%20Dault%20R%2C%20Cloutier%20A-M%2C%20Ethier%20J-F%20%282019%29%20Initiative%20CLARET%26%23x202F%3B%3A%20Consentement%20pour%20l%26%23x2019%3Butilisation%20secondaire%20des%20donn%26%23xE9%3Bes%20m%26%23xE9%3Bdicales%20en%20recherche%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D4JXB4LYM%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Initiative%20CLARET%20%3A%20Consentement%20pour%20l%27utilisation%20secondaire%20des%20donn%5Cu00e9es%20m%5Cu00e9dicales%20en%20recherche%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Anne-Marie%22%2C%22lastName%22%3A%22Cloutier%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222019-06-14%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-24T18%3A57%3A10Z%22%7D%7D%2C%7B%22key%22%3A%22XDMV4LJB%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22lastModifiedByUser%22%3A%7B%22id%22%3A8739163%2C%22username%22%3A%22coum2719%22%2C%22name%22%3A%22%22%2C%22links%22%3A%7B%22alternate%22%3A%7B%22href%22%3A%22https%3A%5C%2F%5C%2Fwww.zotero.org%5C%2Fcoum2719%22%2C%22type%22%3A%22text%5C%2Fhtml%22%7D%7D%7D%2C%22creatorSummary%22%3A%22Beaudoin%20et%20al.%22%2C%22parsedDate%22%3A%222018-09-21%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BBeaudoin%20A-A%2C%20Dault%20R%2C%20Barton%20A%2C%20Cumyn%20A%2C%20Cloutier%20A-M%2C%20Ethier%20J-F%20%282018%29%20Initiative%20CLARET%26%23x202F%3B%3A%20consentement%20pour%20l%26%23x2019%3Butilisation%20secondaire%20des%20donn%26%23xE9%3Bes%20m%26%23xE9%3Bdicales%20en%20recherche%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3DXDMV4LJB%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Initiative%20CLARET%20%3A%20consentement%20pour%20l%27utilisation%20secondaire%20des%20donn%5Cu00e9es%20m%5Cu00e9dicales%20en%20recherche%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Andr%5Cu00e9e-Anne%22%2C%22lastName%22%3A%22Beaudoin%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Anne-Marie%22%2C%22lastName%22%3A%22Cloutier%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%2221%20septembre%202018%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A39%3A58Z%22%7D%7D%2C%7B%22key%22%3A%225ZXQNEKM%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Barton%20et%20al.%22%2C%22parsedDate%22%3A%222018-06-15%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BBarton%20A%2C%20Cumyn%20A%2C%20Dault%20R%2C%20Cloutier%20A-M%2C%20Ethier%20J-F%20%282018%29%20Initiative%20CLARET%26%23x202F%3B%3A%20Consentement%20et%20Litt%26%23xE9%3BrAtie%20pour%20la%20Recherche%20%26%23xC9%3BThique%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D5ZXQNEKM%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Initiative%20CLARET%20%3A%20Consentement%20et%20Litt%5Cu00e9rAtie%20pour%20la%20Recherche%20%5Cu00c9Thique%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Anne-Marie%22%2C%22lastName%22%3A%22Cloutier%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222018-06-15%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-04-24T18%3A56%3A51Z%22%7D%7D%2C%7B%22key%22%3A%222RSBFLIK%22%2C%22library%22%3A%7B%22id%22%3A2298129%7D%2C%22meta%22%3A%7B%22lastModifiedByUser%22%3A%7B%22id%22%3A8739163%2C%22username%22%3A%22coum2719%22%2C%22name%22%3A%22%22%2C%22links%22%3A%7B%22alternate%22%3A%7B%22href%22%3A%22https%3A%5C%2F%5C%2Fwww.zotero.org%5C%2Fcoum2719%22%2C%22type%22%3A%22text%5C%2Fhtml%22%7D%7D%7D%2C%22creatorSummary%22%3A%22Dault%20et%20al.%22%2C%22parsedDate%22%3A%222018-04-27%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BDault%20R%2C%20Barton%20A%2C%20Cumyn%20A%2C%20Cloutier%20A-M%2C%20Ethier%20J-F%20%282018%29%20Caract%26%23xE9%3Briser%20le%20processus%20de%20consentement%20%26%23xE0%3B%20la%20recherche%20dans%20un%20syst%26%23xE8%3Bme%20de%20sant%26%23xE9%3B%20apprenant%20%26lt%3Ba%20title%3D%26%23039%3BCite%20in%20RIS%20Format%26%23039%3B%20class%3D%26%23039%3Bzp-CiteRIS%26%23039%3B%20data-zp-cite%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bitem_key%3D2RSBFLIK%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BCite%26lt%3B%5C%2Fa%26gt%3B%20%20%26lt%3Ba%20title%3D%26%23039%3BDownload%26%23039%3B%20class%3D%26%23039%3Bzp-DownloadURL%20zp-getDownloadURL%26%23039%3B%20data-zp-dl%3D%26%23039%3Bapi_user_id%3D2298129%26amp%3Bdlkey%3DI9IRZE6F%26amp%3Bcontent_type%3Dapplication%5C%2Fpdf%26%23039%3B%20href%3D%26%23039%3Bjavascript%3Avoid%280%29%3B%26%23039%3B%26gt%3BDownload%26lt%3B%5C%2Fa%26gt%3B%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22presentation%22%2C%22title%22%3A%22Caract%5Cu00e9riser%20le%20processus%20de%20consentement%20%5Cu00e0%20la%20recherche%20dans%20un%20syst%5Cu00e8me%20de%20sant%5Cu00e9%20apprenant%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Roxanne%22%2C%22lastName%22%3A%22Dault%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Adrien%22%2C%22lastName%22%3A%22Barton%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Annabelle%22%2C%22lastName%22%3A%22Cumyn%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Anne-Marie%22%2C%22lastName%22%3A%22Cloutier%22%7D%2C%7B%22creatorType%22%3A%22presenter%22%2C%22firstName%22%3A%22Jean-Fran%5Cu00e7ois%22%2C%22lastName%22%3A%22Ethier%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222018-04-27%22%2C%22url%22%3A%22%22%2C%22language%22%3A%22%22%2C%22collections%22%3A%5B%5D%2C%22dateModified%22%3A%222024-02-09T21%3A37%3A08Z%22%7D%7D%5D%7D
Barton A, Cumyn A, Dault R, Cloutier A-M, Ethier J-F (2019) Initiative CLARET : Consentement pour l’utilisation secondaire des données médicales en recherche Cite
Beaudoin A-A, Dault R, Barton A, Cumyn A, Cloutier A-M, Ethier J-F (2018) Initiative CLARET : consentement pour l’utilisation secondaire des données médicales en recherche Cite
Barton A, Cumyn A, Dault R, Cloutier A-M, Ethier J-F (2018) Initiative CLARET : Consentement et LittérAtie pour la Recherche ÉThique Cite
Dault R, Barton A, Cumyn A, Cloutier A-M, Ethier J-F (2018) Caractériser le processus de consentement à la recherche dans un système de santé apprenant Cite Download

Reports

Media